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Childhood Cancer Survivorship and Late Effects - The Landscape in India in 2020
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  • Ramandeep Arora,
  • Puneet Arora,
  • Rachna Seth,
  • Sonal Sharma,
  • Chandan Kumar,
  • Vandana Dhamankar,
  • PURNA KURKURE,
  • Maya Prasad
Ramandeep Arora
Max Super-Speciality Hospital
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Puneet Arora
Milann Fertility Centre
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Rachna Seth
All India Institute of Medical Sciences
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Sonal Sharma
Cankids
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Chandan Kumar
Cankids
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Vandana Dhamankar
Indian Cancer Society
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PURNA KURKURE
Narayana Health SRCC Children’s Hospital
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Maya Prasad
Tata Memorial Hospital
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Abstract

Survivorship care is a major area of focus in the holistic management of childhood cancer with current knowledge and information almost exclusively from high-income countries. In this review, we summarize the state of scientific knowledge, service delivery, advocacy initiatives and research efforts in this field in India. 21 single centre studies published till date (20 in the last decade) confirm some of the well-documented issues in childhood cancer survivors and also highlight the high prevalence of hepatitis B and hepatitis C infection in our survivors. Heterogeneity in methodology, outcome metrics and quality precludes drawing further conclusions and the ongoing multicenter Indian Pediatric Oncology Group study would address this. Besides the usual model of follow-up clinics in hospital settings, innovative models of service delivery led by not-for-profit organisations are being developed. Advocacy initiatives driven by survivors and support groups are also underway. All of these portend a promising future.

Peer review status:Published

02 May 2020Submission Checks Completed
02 May 2020Assigned to Editor
02 May 2020Submitted to Pediatric Blood & Cancer
15 May 2020Reviewer(s) Assigned
20 May 2020Review(s) Completed, Editorial Evaluation Pending
21 May 2020Editorial Decision: Revise Minor
14 Jun 20201st Revision Received
14 Jun 2020Submission Checks Completed
14 Jun 2020Assigned to Editor
15 Jun 2020Reviewer(s) Assigned
18 Jun 2020Review(s) Completed, Editorial Evaluation Pending
19 Jun 2020Editorial Decision: Accept
Sep 2020Published in Pediatric Blood & Cancer volume 67 issue 9. 10.1002/pbc.28556