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FAIR Access to Personal Health Information in Private and Public COVID-19 Health Applications
  • André Carrington,
  • Douglas G Manuel,
  • Carol Bennett
André Carrington
Ottawa Hospital Research Institute
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Douglas G Manuel
Ottawa Hospital Research Institute
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Carol Bennett
Ottawa Hospital Research Institute
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Abstract

There are an increasing number of consumer smartphone and eHealth applications that are potentially helpful for controlling the COVID-19 pandemic. These applications include contact tracing, proximity tracking, eThermometers and heart rate monitoring. Consumers should have access to their data and the ability to share as much or as little, as they see fit, with public health agencies, healthcare providers or researchers--thereby respecting their privacy and their wishes. One patient's choice or risk does not affect another's. We recommend applying FAIR data principles, supported by changes to laws and governance, to meet these needs.