Data Collection
We conducted a retrospective chart review of patients diagnosed with
sickle cell disease (HbSS, HbSC, HbSβ+, or
HbSβ°),between the ages of 2-19 years, who were seen at an outpatient
Pediatric Hematology appointment at the University of Mississippi
Medical Center (UMMC) from October 2013 until April 2019. Data were
collected from the UMMC electronic health record. The most recent clinic
visit was utilized for individuals with multiple outpatient visits.
Chronic transfusion treatment, prescribed medication, and disease
complication (history of acute chest syndrome, stroke, and avascular
necrosis) variables were extracted from the EHR by hand, while all other
variables were abstracted by a computer-generated report.