Data Collection
We conducted a retrospective chart review of patients diagnosed with sickle cell disease (HbSS, HbSC, HbSβ+, or HbSβ°),between the ages of 2-19 years, who were seen at an outpatient Pediatric Hematology appointment at the University of Mississippi Medical Center (UMMC) from October 2013 until April 2019. Data were collected from the UMMC electronic health record. The most recent clinic visit was utilized for individuals with multiple outpatient visits. Chronic transfusion treatment, prescribed medication, and disease complication (history of acute chest syndrome, stroke, and avascular necrosis) variables were extracted from the EHR by hand, while all other variables were abstracted by a computer-generated report.