Measures
Information about the socio-demographic and clinical characteristics of
parents and their children were collected in survey. Parents’ caregiving
ability was measured based on their last week’s experience, using the
Hematologic Malignancies’ Family Caregiver Skills Scale (HMFCGSS) that
was previously validated in hematologic malignancies’ family caregivers
in China (Cronbach’s α = 0.920)11Qian SJ. The adaptation of
hematologic malignancies family caregiver skills scale. Master thesis.
Soochow University, Suzhou, Jiangsu, China, 2016..
HMFCGSS
consists of 6 domains with a total of 23 items: disease cognitive
ability (DCA) with 3 items, general approaches to caregiving (GAC) with
3 items, person-centered care skills (PCS) with 5 items, emotional
management ability (EMA) with 4 items, appraising supportive resources
(ASR) with 3 items, balancing caregiving needs and one’s own needs (BCN)
with 5 items (see Appendix). Each of the 23 items was measured on a
5-point scale ranging from not difficult (1) to very difficult (5). In
the present study, all the items were recoded as dichotomous indicator
of parent’s caregiving ability: 1-”no difficulty” (if item score ≤2) vs.
0-”at least some difficulty” (if item score≥3).