Navigator Training and Role
In designing the TN role for this study, an ecological assessment approach34-36 and a motivational interviewing style37, 38 was adopted. The consensus statements on transition12, 24 recommend areas of attention for clinicians; a typically under-addressed area is a focus on future goals.39 The TN training modules emphasized investigating, acknowledging, and supporting the future goals of AYAs with SCD. TN training included the consensus statements, online healthcare transition modules and continuing education40, 41, related literature42, transition materials designed for patients and families by the institution and recommended local and national resources on the web43 (see Supplemental 1). Educational materials specific to SCD inheritance, pathophysiology, treatment, complications, and self-management were also incorporated. The intervention could be implemented by a TN with a social work, nursing, or patient educator background.