Recruitment
Clinic rosters of youth in the SCD hematology clinic were assessed for
the following eligibility criteria: (1) aged 17-20 inclusive; (2)
confirmed diagnoses of SCD (SS, SC, SBeta Thalassemia genotypes); (3)
cared for in the subspecialty Pediatric Hematology service; (4) spoke
English. Eligible patients were telephoned and invited to participate in
the study. Those who were interested met the study coordinator at their
next medically indicated clinic visit; those 18 and older provided
written informed consent; those who were aged 17 provided assent and
their parents provided permission.