Survey Instruments
Youth completed survey instruments at enrollment (T1) and program
completion (T2). A list of the survey measures, their purpose, source,
reliability, and validity are detailed in Table 2. These instruments
included both validated measures as well as process measures adapted
from tools recommended by Got Transition® and previous assessments of
provider transition practice at the institution27, 43These measures assessed transition readiness, health literacy, SCD
knowledge, confidence in managing SCD and pain management, SCD control,
self-reported health care utilization, patient satisfaction with
transition and satisfaction with the TN intervention. All data was
entered into REDCap45 by the research coordinator.