Survey Instruments
Youth completed survey instruments at enrollment (T1) and program completion (T2). A list of the survey measures, their purpose, source, reliability, and validity are detailed in Table 2. These instruments included both validated measures as well as process measures adapted from tools recommended by Got Transition® and previous assessments of provider transition practice at the institution27, 43These measures assessed transition readiness, health literacy, SCD knowledge, confidence in managing SCD and pain management, SCD control, self-reported health care utilization, patient satisfaction with transition and satisfaction with the TN intervention. All data was entered into REDCap45 by the research coordinator.