Data Analysis
Summary statistics (frequencies, percentages) were computed to describe participant characteristics and their contacts with the TN during the intervention. Pre/post scores on measures of transition readiness, SCD knowledge, confidence in managing SCD, medication adherence and pain management were compared using paired t-tests and the associations of patient-TN contacts with post-test measures were analyzed using correlations. Pre/post ratings of participant’s experience of interaction with their healthcare provider regarding transition were compared using McNemar tests for paired analysis. Intake assessments were completed on paper by the TN; insurance/SSI status and items related to education and career goals were hand-coded from this assessment by two members of the research team. Barriers to transition were identified through patient self-report and TN observation, and separately documented on the barriers checklist (see supplement 1); responses by participants and TN were compared using McNemar tests.