Disease-specific quality of life questionnaires |
|
|
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PBC-40[17]
|
6(40)
|
Fatigue, emotional, social, cognitive, itch and symptoms
|
5 point scale,1(not at all) to 5(very much)
Total and subscale score
Higher score indicates poorer health
|
PBC-27[12]
|
7(27)
|
Other Symptoms, dryness, itch, fatigue, cognitive, emotional and
social
|
5 point scale,1(not at all) to 5(very much)
Total and subscale score
Higher score indicates poorer health
|
PBC-10[15]
|
6(10)
|
Fatigue, emotional, social, cognitive, itch and symptoms
|
5 point scale,1(not at all) to 5(very much)
Total and subscale score
Higher score indicates poorer health
|
CLDQ[18]
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6(29)
|
Abdominal symptoms, fatigue, systemic symptoms, activity , emotional
function, worry
|
7 point scale,1(not at all) to 7(very much)
Total and subscale score
Higher score indicates poorer health
|
CLDQ-I[19]
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6(28)
|
Abdominal symptoms, fatigue, systemic symptoms, activity , emotional
function, worry
|
6 point scale,1(not at all) to 7(very much)
Total and subscale score
Higher score indicates poorer health
|
LDSI 2.0[20]
|
18
|
Itch, joint pain, pain in the right upper abdomen, sleepiness during the
day, worry about family situation, decreased appetite, depression, fear
of complications and jaundice, nine other items measure the hindrance of
these symptoms to daily activities
|
5 point scale,1(not at all) to 5(to a high extent)
Subscale score
Higher score indicates poorer health
|
Generic quality of life questionnaires |
|
|
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SF-36[21]
|
8(36)
|
Physical functioning, physical role functioning, limitation emotional
role limitation, bodily pain, mental health, social functioning,
vitality and general health perception
|
100 point scale,0(not at all) to 100(very much)
Total and subscale score
Higher score indicates greater health
|
SF-12[22]
|
2(12)
|
Physical component and mental summary
|
100 point scale,0(not at all) to 100(very much)
Total and subscale score
Higher score indicates greater health
|
15D(generic)[23]
|
15
|
Breathing, mental function, speech (communication), vision, mobility,
usual activities, vitality, hearing, eating, elimination, sleeping,
distress, discomfort and symptoms, sexual activity, and depression
|
5 point scale,1(not at all) to 5(very much)
Total score
Higher score indicates poorer health
|
NIDDK LTD-QOL[24]
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5(21)
|
Measures of disease, psychological status, personal function, social and
role function, and general health perception
|
5 point scale,0(not at all) to 4(extremely)
Total and subscale score
Higher score indicates poorer health
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NIDDK-QA[16]
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4(47)
|
Liver disease symptoms, physical functioning, health satisfaction and
overall well-being
|
5 point scale,0(not at all) to 4(extreme)
Total and subscale score
Higher score indicates greater health
|
HUI-Mark-2[25]
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7(15)
|
Sensation, mobility, emotion, cognition, selfcare, pain and
fertility
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2 point scale,0(not at all) to 1(very much)
Total and subscale score
Higher score indicates greater health
|
HUI-Mark-3[26]
|
8(15)
|
Vision, hearing, speech, ambulation,
dexterity, emotion, cognition and pain
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2 point scale,0(not at all) to 1(very much)
Total and subscale score
Higher score indicates greater health
|
NHP[27]
|
6(38)
|
Energy, sleep, pain, emotional reactions, social isolation, and physical
mobility
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2 point scale,0(no) to 1(yes)
Total and subscale score
Higher score indicates poorer health
|
NHANES Ⅲ
(https://wwwn. 90 cdc.gov/nchs/nhanes/nhanes3/default.aspx)
|
4(83)
|
Articular symptoms,
activity limitations (in both household and job-related
activities), hobbies and leisure activities, and social life
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Total and subscale score
Higher score indicates poorer health
|
PROMIS-29(generic)[28]
|
7(29)
|
Physical function, depression, anxiety, fatigue, sleep disturbance,
ability to participate in social roles and activities (social roles),
pain interference, and one pain intensity item
|
5 point scale,1(not at all) to 5(very much)
Total and subscale score
Higher score indicates poorer health
|