SCD physician expert* |
Procedure for newborn screen follow-up |
On-site
transcranial Doppler ultrasonography |
Partnership with HSCT
team |
Pediatric hematology (or pediatric hem/onc) team providing inpatient
care |
Written guidelines for acute & chronic care |
Iron overload
measurement by MRI |
Partnership with adult SCD program for
transition |
Outpatient nursing staff with SCD expertise* |
Protocols for Emergency
Dept care |
Compounded hydroxyurea |
Transfusion medicine
specialist |
Case manager/care coordinator* |
Defined program for transition from
pediatric to adult care |
Erythrocytapheresis for acute and chronic
complications* |
Timely access to subspecialists* |
Social worker* |
Standardized order sets in electronic medical record
for pain admission |
Annual individualized pain assessment, with
individualized pain plan if indicated** |
Neuropsychologist |
Education liaison |
Quality management and improvement process** |
|
Gynecologist/prescriber of contraception |
|
Formal process for patient/family input** |
|
Access to reproductive
services for parents of children with SCD |
|
|
|
Mental health provider |