Conclusion

We would recommend that all patients with HHT or severe epistaxis keep a symptom diary similar to “xxx’s”. We suggest that patients should record a minimum of date and time of nosebleed onset, side of bleed, estimated severity, any potential influencing factors, and use of treatments or medications.
An effective symptom diary would enable clinicians to quickly identify patterns over time and for patients to gain a more objective understanding of their condition. We suggest that “xxx’s” diary could be such a standard.