Ambulation
None of the study subjects (0 of 16) were able to walk unassisted; however, none were bedbound. Ninety-four percent (15 of 16) reported that they currently use a wheelchair “all of the time” and the remaining individual reported using a wheelchair “most of the time”. Thirty-eight percent (6 of 16) reported that they currently used braces “always”, and 6 % (1 of 16) reported that they currently used a walker “most of the time”. Nineteen percent (3 of 16) reported using other devices (crutches, stander, and gait trainer). None of the participants (0 of 16) reported using a cane.
Seventy-five percent (12 of 16) of subjects reported using a wheelchair starting at 0-10 years of age, 6% (1 of 16) starting at 10-20 years, and 6% (1 of 16) starting at 20-30 years. Sixty-nine percent (11 of 16) reported using braces starting at 0-10 years of age; 25% (4 of 16) reported first using a walker at 0-10 years of age, and 6% (1 of 16) reported first using a walker at 10-20 years of age.