Patient 2
Patient 2 was discharged from the NICU on nasal cannula to be used during sleep. Soon after discharge, he was readmitted several times for breath holding spells and unusual rigid movements but had normal repeat EEG and negative work up.
Currently, he is 4 years of age, has global developmental delay, is non-ambulatory, non-verbal and G-tube dependent. Since NICU discharge, he is no longer having apneic episodes during sleep and oxygen was discontinued. Ophthalmology has since noted esotropia, bilateral myopia and astigmatism. He is also being followed for short stature, obesity, GERD, and he has undergone strabismus surgery, tonsillectomy adenoidectomy, and bilateral orchiopexy.
Patient 2 continues to have mild torticollis and mild knee flexion contractures bilaterally managed with custom solid orthoses and physical therapy. He also receives occupational and feeding therapies and has nursing at home.