4. CONCLUSION
CF R.I.S.E was successfully translated and adapted in our center. The success of the adaptation of CF RISE program can be attributed to the participation of a multidisciplinary team, utilization of educational resources, and regular meetings for feedback and compliance. Based on the program’s outcomes, the aim is to share all materials and surveys with other centers, ensure their utilization, and benefit all pwCF.
In the coming period, our center will enroll pwCF aged 16-25 years in the CF SOBE program. The enrolled patients will be reassessed for their knowledge and skills after KAQs and RCLs. People with CF and their families who receive personalized education within the scope of the project are expected to increase their knowledge and skills about CF at the end of 1.5 years. Periodically throughout the project, the individual deficiencies of the patients will be identified through interim information assessments and individual and collective trainings (webinars, etc.) will be organized to overcome the information deficiencies (see Figure 1).
It is aimed that the project will become a routine practice of our center in the coming period. In addition, within the scope of the project, joint visits with adult clinics with limited experience in CF are aimed to increase their expertise in CF disease and active participation of transfer clinics in the project.