“I want my children to experience as normal a life as they
possibly can and so for me, that includes travelling. So you know, yes
we take those risks and we just go for it! And we do it because, you
know I don’t want to have the regret of not having done it.” (mother
3)
For other parents the PCD worries were with them every day. Always being
on high alert can be overwhelming. These parents felt worn out and
overrun by PCD.