Major Themes: |
PCD diagnosis child |
Treatment regiment child |
Health status
child |
Coping |
Concerns for
future |
Sub-Themes:
|
Prenatal experiences
|
Daily treatment:
Management
Parent-child interaction
Emotional impact on parents
|
Emotional
|
Support seeking
|
Explaining PCD
|
|
Feelings before |
Medical procedures and medication |
Health |
Problem-focused |
Social/emotional impact PCD |
|
Feelings after |
Outpatient appointments |
Behavioural |
Emotional-focused |
Progression PCD |
|
|
Hospitalization |
Vocational |
Cognitive adaptive |
Impact PCD on
development, social activities, career goals |
|
|
|
Family goals |
|
Impact PCD on fertility |
|
|
|
Social |
|
Ability child to manage PCD |