“With her it comes on so sudden, so you don’t really notice a
change until it’s too late and you need to get her into the hospital on
to oxygen. Because she could be fine, the last time we had it, she went
to bed, she’d been at nursery all day, she had her tea, she went to bed,
she was fine – I noticed she was a bit wheezy, so I gave her blue
inhaler, I waited didn’t have any impact on her, gave it to her again
and she was just getting worse and worse and worse. It was just so
sudden like within a couple of hours we were having to call an ambulance
out.” (mother 11)
Hospitalizations were described as being horrific and overwhelming; it
made the parents feel out of control. The following mother disclosed: