Decision aid format and delivery
The majority of patients and clinicians favor a web-based decision aid but acknowledged that paper options are important for those who are less tech-savvy. Several patients and clinicians suggested incorporating videos into the decision aid as an easily digestible platform to deliver information. Patients and clinicians wanted clear, concise data about outcomes, risks, and benefits: “I think people respond better not to vague [statements]. You can say risks, and bullet point them… pros and cons. If you give somebody; ‘We use this drug and it works in X number of cases. We know this is 70% effective. You might have some side effects. The side effects are…’ I think if you give people the information. I’m telling you, bullet points, one-line sentences or two-line sentences.” -Patient 2. Most also supported using visualizations whenever possible to reinforce clinician explanations and to contextualize data. About half of patients and clinicians felt the decision aid would be most useful prior to a consultation to prime patients for the conversation, while the other half favored viewing it after to reinforce the discussion: “After the appointment… I don’t want to go on the website without… I needed to know what it was. I didn’t even know how to pronounce the word properly, ablation.” -Patient 1. Finally, patients and clinicians felt translations to multiple languages were critical for accessibility among limited-English proficiency patients.