Decision aid format and delivery
The majority of patients and clinicians favor a web-based decision aid
but acknowledged that paper options are important for those who are less
tech-savvy. Several patients and clinicians suggested incorporating
videos into the decision aid as an easily digestible platform to deliver
information. Patients and clinicians wanted clear, concise data about
outcomes, risks, and benefits: “I think people respond better not
to vague [statements]. You can say risks, and bullet point
them… pros and cons. If you give somebody; ‘We use this drug and
it works in X number of cases. We know this is 70% effective. You might
have some side effects. The side effects are…’ I think if you
give people the information. I’m telling you, bullet points, one-line
sentences or two-line sentences.” -Patient 2. Most also supported
using visualizations whenever possible to reinforce clinician
explanations and to contextualize data. About half of patients and
clinicians felt the decision aid would be most useful prior to a
consultation to prime patients for the conversation, while the other
half favored viewing it after to reinforce the discussion: “After
the appointment… I don’t want to go on the website
without… I needed to know what it was. I didn’t even know how to
pronounce the word properly, ablation.” -Patient 1. Finally, patients
and clinicians felt translations to multiple languages were critical for
accessibility among limited-English proficiency patients.